Almost 2 weeks Post op from 3rd life saving surgery

ook who’s turned a corner!

Feeling SO much better today now we’ve got on top of the other complications EDS & it’s friends throw into the mix! ?

☀️Sitting up, seizure free, smiling, pain controlled & able to sit in the grounds to feel the sun on my face- it’s a beautiful day!!!

I’m so grateful to Dr Gilete & his team for saving my life again. They’re are always there to help & pick up the pieces- despite none of this being their fault!

They gave clear instructions on intubation methods which sadly weren’t followed….. but, upon hearing how poorly I was, & my symptoms, I received a call within 30mins to arrange scans; they fit me in ASAP for a consult-despite being the Christmas holidays & scheduled my surgery for the first possible date, despite being crazy busy!

They’ve been brilliant at managing my pain, always believe me & work fast to obtain proof of the problem & attempt to fix it as safely as possible – with my best interests at heart!

It’s not easy doing revision surgeries on such complex cases especially after the original fusion has been damaged so badly, & our ultimate aim was to get me seizure free & safe again! This photo is proof that they’ve achieved that, for a third time!

Now to heal, rest, allow the new bone to fuse around the extra hardware & recover again…. let’s see how well we can get me this time – third time lucky! ?

I’m looking to be discharged on Monday & fly home around 2weeks later- can’t wait to see my dog, & of course my niece! ✈️

Donations to help pay off the costs can be made at:


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP

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