CCI

??#PurpleZebraBall?? As you are aware we are having a fantastic #PurpleZebraBall to raise funds for #MelaniesMissionToLive for her life saving surgery that is desperately needed ASAP! The ball is to be held at #KingstonPark on February the 25th 2016! We NEED a minimum deposit of £10pp by Monday (the 6th […]

Ball Deadline & Update!

 in Fundraiser / Special Event  tagged #ball / #FundraisingBall / #MelaniesMission / #PurpleZebraBall / CCI / EDS / Fundraiser / MelaniesMissionToLive by
  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...

 in Blog  tagged #MelaniesMission / #Seizures / 15 things I couldn't live without / Blog / CCI / Cranio Cervical Instability / EDS / Ehlers Danlos Syndrome / Fundraising / Graduation / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive / Social Media by