Disaster during the covid crisis!

054954A9-96E4-495D-B489-5BB0D91ED612Time for an update…. a target has been set. £50K.

So unfortunately things are getting worse scarily fast… everyday new symptoms appear- mainly serious neurological ones.

My visions affected now with lightening flashes in my eyes and floaters. Excruciating headaches, vomiting, seizures, agonising pain in my head neck and spine which I can’t get a minutes break from… & the cracks occurring literally everytime I move, are so loud they’re audible even down the telephone. I had so many seizures yesterday and I’m getting so little sleep, it’s a real struggle.

I spoke to the lovely team in Barcelona yesterday and they send me a quote, so I’m setting my target to £50,000. This surgery will be to fuse the remainder of my spine (skull to pelvis) and fix what’s going on in my skull…. it’s very serious and urgency is a must.

The team are having a meeting next week to discuss how to get me there ASAP as were all in this crazy covid pandemic – so they need to see how we go about getting me there as it’s a health emergency & then we can set a date…. hopefully within the next month.

Thank you for the donations so far- I really appreciate it!



? https://www.paypal.me/melaniesMission2Live


? http://www.melanies-mission-eds.org.uk/donate-now/

About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP

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