Time for an update…. a target has been set. £50K.
So unfortunately things are getting worse scarily fast… everyday new symptoms appear- mainly serious neurological ones.
My visions affected now with lightening flashes in my eyes and floaters. Excruciating headaches, vomiting, seizures, agonising pain in my head neck and spine which I can’t get a minutes break from… & the cracks occurring literally everytime I move, are so loud they’re audible even down the telephone. I had so many seizures yesterday and I’m getting so little sleep, it’s a real struggle.
I spoke to the lovely team in Barcelona yesterday and they send me a quote, so I’m setting my target to £50,000. This surgery will be to fuse the remainder of my spine (skull to pelvis) and fix what’s going on in my skull…. it’s very serious and urgency is a must.
The team are having a meeting next week to discuss how to get me there ASAP as were all in this crazy covid pandemic – so they need to see how we go about getting me there as it’s a health emergency & then we can set a date…. hopefully within the next month.
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