About Mel

Mel is a 32yr old bubbly, caring & loving young lady facing the prospect of dying! 

Mel suffers severely from Ehlers-Danlos syndrome (EDS) that causes all of her joints to dislocate, especially those in her spine and neck. You can read more about EDS on our what is EDS page. This lead to severe cranial, neck and spinal instability

Mel hit the headlines when she graduated from Newcastle Universities School of Biology with a BSC Honours Degree on a stretcher. Mel lives in Cramlington, Northumberland and has always aspired to become a primary teacher!


She underwent specialist and life saving neurosurgeries in Barcelona Spain, to fuse her skull and entire Cervical spine together, and a second surgery to fuse her lower thoracic, lumbar spine and pelvis to prevent it from dislocating!

The surgeries saved Mel’s life & she improved dramatically following them- thanks you all YOUR generous donations and support!

However, her fusion broke 2years later during intubation for an unrelated surgery.

As a result she is fully fused skull to pelvis plus both Sacroiliac joints, but unfortunately the fusion is unstable in two areas due to broken titanium screws inside the vertebrae.

5D034A87-F724-4FE1-99AA-AF42D1897306She is now in a surgical Halo vest to stabilise her, and has been since May 2021- to prevent her from having life threatening respiratory arrests and constant seizures. It is too dangerous to remove it, but it is “not a long term solution” and she can not live like this forever.. but without it she will die.

Her specialist neurosurgeon consulted with other experts worldwide to create the best surgical plan to save her life by fusing the two unstable areas with broken screws, from the front (Anteriorly).

We are fundraising £150,000 by January 2023 to pay for her life saving surgery, to enable her to have her fusion repaired so she can live her life at long last!

Mel needs your support more than ever, to save her life! 


Thank you for supporting  #MelaniesMissionToLive, we hope you will continue to support us to save Mel’s life by donating so we can fund the repair of the broken fusion- enabling her to get back on track, to the phenomenal recovery she was making!


If you’d like to sponsor our cause or can provide support of any kind please get in touch today by visiting our contact us page. Alternatively, please email info@melanies-mission-eds.org.uk or engage with us via social media. YOU CAN MAKE A DIFFERENCE, so please donate today!!


If there are any surplus funds they will be used to purchase treatment or equipment needed -that is not available on the NHS.