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Tomorrow night (Dec 31st) we are asking that everyone “raises a glass to raise some cash”, by taking a “New Years selfie” & making a small donation (say £2) to my gofundme or Paypal! I hope you will all join in with this whilst celebrating the New year, by posting […]

Raise a Glass to raise some Cash


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  ???Dear Santa, ?? ??This Christmas.…??? This festive season Please support Mel by making a donation, fundraising or doing a sponsorship in aid of “The Melanie’s Mission Charitable Trust 2016”, Donate at: ?www.gofundme.com/Melanie-s-Mission ?www.melanies-mission-eds.org.uk/donate-now/ ?Or PayPal melanies-mission@hotmail.com Thank you for supporting #MelaniesMissionToLive? ❄️?Merry Christmas!?❄️  

Dear Santa,


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  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...



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I would like to say A HUGE thank you to #NorthumberlandLightening who raised a grand total of £2,300 to be split between 5 local charities including #MelaniesMissionToLive! ? Thanks guys! You’re AMAZING- we will add the £460 raised to our campaign total!! Check out their story of their #120Days campaign to […]

Northumberland Lightening #120Days