About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 31yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help in the USA! WE NEED YOUR HELP

💜Update – devastating news💜 I’m not fixed…. I’ve been pretty quiet recently as I’ve been really poorly with covid & the after effects, I’m still not fully recovered to be honest. But, it’s time to update you all about my neck. My fusion was broken years ago, and there are […]

Devastating news

We had a trip to La Rambla / Barcelona & saw this beautiful fountain. I managed to sit very well but was very sore afterwards – and today, as expected! Thanks again for all the support! #melaniesmissiontolive💜 DONATE: 💜 💜 💜 💜Just Giving:

First trip out.

Unfortunately we have had to postpone our return home, which was planned for this Sunday. Dr Gilete felt I need to stay longer to ensure I can sit up safely and seizure free before being confident and able to sign me fit to fly for the flight home…. & after […]

Postponed return home

Hi, Everything’s a bit of a stress at the moment, it’s all a bit up in the air! My infection & vomiting got worse so Dr Gilete started me on more antibiotics straight away, a different antibiotic cream & a long course of strong oral antibiotics. They’ve taken cultures and […]

How to get home

Hi, So a lot has happened in a short space of time… one thing being the day we planned to reattach the halo, my neck started constantly clicking again and I had a seizure and stopped breathing… this was the first one post op. So, I was put back into […]

Post op update, mixed emotions

So, today’s update isn’t very exciting. I’ve been very tired and in a lot of pain. We all decided it’s best for me to not sit up until the halo vest is back on, so I’m on bed rest in all my braces to keep me as safe as possible, […]

Sunday 23rd may

Today’s been a better day! I’ve been awake all day, managed to eat 3meals for the first time in ages & then after a very long hard day operating Dr Gilete came to help me try and sit up in bed. We were all pretty nervous  & my mum, Dr […]

Sitting up!