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Latest Posts

  • Update 2weeks post lifesaving surgery to repair and extend a broken fusion
  • BALL TICKETS ON SALE NOW
  • £70,000 needed IN 3 weeks..
  • Melanie’s Mission Birthday Ball 2019
  • Appeal video 2019

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Latest Posts

  • Update 2weeks post lifesaving surgery to repair and extend a broken fusion 28/07/2019
  • BALL TICKETS ON SALE NOW 02/07/2019
  • £70,000 needed IN 3 weeks.. 23/06/2019
  • Melanie’s Mission Birthday Ball 2019 20/06/2019
  • Appeal video 2019 13/06/2019
  • New appeal! 31/05/2019

Latest Tweets

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Melanies Mission
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Gary_D_WoodburnGary Woodburn@Gary_D_Woodburn·
17 Nov

I met this Australian couple in the hozzy, great people who really deserve a break. Erin has the same problems as Liv & they had to borrow loads of money to get her here quickly. They are still fundraising to pay off surgery, please help them if you can. https://t.co/OBvsj4jjOV https://t.co/pGQ8zlto2c

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JemmasJourneyHope4Jemma - Jemma's Life Saving Neurosurgery@JemmasJourney·
23 Oct

Thank you for all the donations so far . Please continue to help more people see this by retweeting this tweet. @dailyecho @ehlersdanlosuk @thismorning #Hope4Jemma #EDS

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Gary_D_WoodburnGary Woodburn@Gary_D_Woodburn·
5 Oct

We were on the BBC local news again last night. The response to our LIFE for LIV appeal so far has been incredible ! There's still time to join our BIRD for LIV event tomorrow, great prizes and you could help raise the last few K required to fund life saving surgery for Liv.

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LifeforLiv1Life for Liv@LifeforLiv1·
2 Oct

Looks like Liv beat brexit to get top billing on the front page this morning. #brexit #EhlersDanlosSyndrome #CCI

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Gary_D_WoodburnGary Woodburn@Gary_D_Woodburn·
29 Sep

I was on the BBC local news tonight. Pretty embarrassing tbh but it's important to raise awareness of Liv's situation however I can. If that means going bald in the process then so be it ! #EhlersDanlosSyndrome #CCI https://t.co/2GF0ppT1CG

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