Monthly Archives: October 2016


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The Michaela Percival School Of Dance are kindly choreographing & performing a spectacular Flash Mob in aid of Melanie’s Mission To Live! The flash mob will take place at Mannor walks Shopping Centre on the 10th of December at 3pm, in centre mall 3 opposite Claire’s Accessories! This is going […]

Melanie’s Mission To Live Flash Mob!


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  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...


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Hi, I’m taking the opportunity to write an update while I’m feeling a little better!   Unfortunately I have spend almost all of my time since June, in the Freeman Hospitla with constant UTI/Kidney infections caused by my catheter and hopeless immune system! I now have a long term line (a […]

Home in sight!!



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I would like to say A HUGE thank you to #NorthumberlandLightening who raised a grand total of £2,300 to be split between 5 local charities including #MelaniesMissionToLive! ? Thanks guys! You’re AMAZING- we will add the £460 raised to our campaign total!! Check out their story of their #120Days campaign to […]

Northumberland Lightening #120Days


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????Bad news!!???? Unfortunately due to my severe ill health with constant infections I’m devestated to have to say the #MelaniesMissionToLive purple zebra ball is having to be postponed from November the 5th until sometime in the New Year! So sorry for the inconvenience and I will let you all know […]

Purple Zebra Ball -POSTPONED




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Just a quick update to say I’m in hospital again with another infection! Been here 6 days now, I was featured in the Chronicle the other day due to the struggle we have had getting support with care, see the story here: http://www.chroniclelive.co.uk/news/north-east-news/northumberland-woman-forced-live-life-11960368  

Hospital again… day 6!