Monthly archives: October 2016


The Michaela Percival School Of Dance are kindly choreographing & performing a spectacular Flash Mob in aid of Melanie’s Mission To Live! The flash mob will take place at Mannor walks Shopping Centre on the 10th of December at 3pm, in centre mall 3 opposite Claire’s Accessories! This is going […]

Melanie’s Mission To Live Flash Mob!


  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...


Hi, I’m taking the opportunity to write an update while I’m feeling a little better!   Unfortunately I have spend almost all of my time since June, in the Freeman Hospitla with constant UTI/Kidney┬áinfections caused by my catheter and hopeless immune system! I now have a long term line (a […]

Home in sight!!