The surgery

What is EDS and CCI - picture of pinned skeletonThe specialist and potentially life-saving and spinal and brain surgery Mel needs is based only in the USA & Spain. The surgery entails fusing Mel’s skull to her neck using metalwork.

It is a long and risky surgery especially on complex EDS patients like Mel, with a long recovery period until the bones fuse together providing the stability that Mel desperately needs!

However, Dr Gilete is a neurosurgeon who has recently been using the technique to operate and fuse EDS patients succesfully & he treats EDS / CCI patients from Europe, with a good success rate.

YOU can make a difference

Every donation, shared post and re-Tweet, makes a difference, helps Mel’s regain her quality of life and reduce the extreme daily pain that she suffers, so please visit our How You Can Help page to make a donation today or download our FREE fundraising packs.



If you’d like to sponsor our cause please visit our donate now page. If you can provide support of any other kind please get in touch today by visiting our contact us page. Alternatively, please email or engage with us via social media.