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Look who’s turned a corner! Feeling SO much better today now we’ve got on top of the other complications EDS & it’s friends throw into the mix! 🦓 ☀️Sitting up, seizure free, smiling, pain controlled & able to sit in the grounds to feel the sun on my face- it’s […]

Almost 2 weeks Post op from 3rd life saving surgery

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Hi, Just thought I’d update everyone on the plan! Not long left now, which I’m so grateful about as I’m suffering so much with all these seizures & symptoms. My skull is slipping because, the titanium screws at C1 are BROKEN inside the bone- this wasn’t apparent on earlier scans […]

Surgical plan

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💜 UPDATE💜 Need to raise £20k by January the 20th to cover outstanding costs for surgery and accommodation. NEW CAMPAIGN PAGE IS: gofundme.com/MelaniesMissionToLive Melanie Hartshorn from Cramlington Northumberland is a 30yr old biology graduate whom hit the headlines in the media after graduating in biology on a stretcher. Melanie’s Mission […]

Latest fundraising campaign

So it’s been over 2weeks since my lifesaving surgery to repair my fractured neck fusion and broken screws. They had to place a new skull plate higher up the back of my skull and extend the fusion down to T4 with clamps and screws to get past the broken screws […]

Update 2weeks post lifesaving surgery to repair and extend a ...

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Melanie’s Mission birthday ball, is going to be held on Friday August the 30th 2019 at Kingston Park rugby stadium 7.30pm – midnight. Tickets are £30pp. Its going to be a night to remember & raise vital funds for Mel’s life saving surgery & essential aftercare costs. The night will […]

BALL TICKETS ON SALE NOW

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Hi, As you know I had surgery recently to repair torn knee cartilage. I have “difficult airway information” explaining I must have fibre optic intubation to protect my fusion. This was discussed with the anaesthetics team & I wore my neck brace to theatre. Unfortunately these instructions weren’t followed. Since […]

£70,000 needed IN 3 weeks..

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  Save the date! I’m have another fundraising ball to raise funds for my lifesaving surgery. It’s going to be on Friday the 30th of August & tickets will be priced at approx £30pp. After the success of the last fantastic ball we held 2yrs ago, I decided to organise […]

Melanie’s Mission Birthday Ball 2019

https://www.itv.com/news/tyne-tees/2019-05-31/woman-with-rare-genetic-condition-suffers-huge-setback-after-life-changing-surgery/

New appeal!

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Just over 2yrs I’m from my fusion surgery, I was planning on posting a positive update telling you all how fantastically well I’ve been doing… how much I’m able to live my life, nights out weekly, concerts, volunteering & gaining experience in a Primary school in preparation for doing my […]

Bad news

https://youtu.be/M_RZOfQanGs  

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Time for an update…. a target has been set. £50K. So unfortunately things are getting worse scarily fast… everyday new symptoms appear- mainly serious neurological ones. My visions affected now with lightening flashes in my eyes and floaters. Excruciating headaches, vomiting, seizures, agonising pain in my head neck and spine […]

Disaster during the covid crisis!