5 weeks left


? ????? ????, £????? ??????????? ??????!

We only have 5 ????? ????, ?????? ???? ?? by donating and sharing my story!

My neck instability is getting ????? ??? ?????, it’s ?????????? ??? ????????? ???????! Those around me are noticing the ???????, rapid ???????- more vomiting, paralysis, diaphragm issues, pain, and extremely loud, excruciatingly painful pops and cracks – which make me shout out as my vertebra dislocate and slide in and out of joint!

Katiya has been extra caring recently, she snuck downstairs and into my bed at 1am knowing i’s be awake as I don’t sleep much at night!

So we had a little sleepover and watched some films on my ceiling projector in bed together, with Poppy too- watch to the end of the video to see Poppy’s smile!

It was lovely, nice to have some snuggle time after so long without it, but my neck was sliding out of joint constantly and giving ???? ???? ???? back into joint, triggering all my ?????????? ???????????? ????????! Which she notices now, as she’s older … and very much aware, there’s no hiding it now!

The next afternoon she did my makeup for me as “?? ???? ???? ?? ????????? ?? ????? ?? ????? ???s ????? ? “???? ?? ???? ?????” ??? “???? ??? ???? ?? ????? ??????? ?’? ???? ????” …. ? She’s not wrong! Bless her!

Hopefully soon we can have proper cuddles and get out for that professional makeover and photoshoot trip, that I’ve promised!

There’s no denying that ?’? ?????, ???? ??? very ?????? ???, ? ???? ??? ??? ???? ? ??? ???!
Thank you to everyone who’s shown their support recently, it’s making a difference, ??? ? ???? ???? ?? ??????? ?? ??? ????? ?? ???? ??? ????? ?? ????! There’s no other option, I simply have to, so please please help me if you can, my life depends on it and this is my last and only chance!

Love,
Mel x

Donate #Fundraising #MelaniesMissionToLive?

??????: :
? ????? ???? by donating via:
https://pay.collctiv.com/melanies-mission-to-live-51511

????? ???? ?? ??????:
?https://www.paypal.me/melaniesMission2Live
? https://www.gofundme.com/f/melaniesmissiontolive2021
? http://www.melanies-mission-eds.org.uk/donate-now/
? BACS (message for details)


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP

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