Today is a bad day!


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I’ve been having issues with my diaphragm allll night and day, then I got up and went all dizzy and vomited. My neck has been clicking in and out of place all night in the two unstable places. We’ve checked the halo and it’s all tight but I’m just deteriorating… it’s not holding me as well as it used to as my joints are getting looser from the constant slipping in and out! Scary to think it’s not doing the job as well when that’s the only thing keeping me alive!

Im in so much pain today, I just had to admit defeat and go back to bed… with painkillers, sick bags, the lights off …. And my oxygen as my head is killing!

Hopefully tomorrow will be a better day! I’ve so much to do, and so much money to raise … and so little time to do it in! Ugh ?

MelaniesMissionToLive?

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? ????? ???? by donating via:
https://pay.collctiv.com/melanies-mission-to-live-51511

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?https://www.paypal.me/melaniesMission2Live
? https://www.gofundme.com/f/melaniesmissiontolive2021
? http://www.melanies-mission-eds.org.uk/donate-now/
? BACS (message for details)


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP

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