Never give up


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💜”When the world says “give up”, HOPE whispers, “try one more time!” – The little Mermaid.🧜🏼‍♀️💜

Last night was a better night, i managed a few hours sleep rather than just the measly one I’ve been getting since surgery & although when I woke up I was in agony, I had a fantastic nurse looking after me who got it under control within minutes!

I’ve now been here in Teknon since the 26th of January- 19days! Since my halo was fitted, & we are now on day 12post op.

The pain is much better controlled now & so the plan is to work on reducing the pain infusion & steroids slowly- & building up my sitting tolerance, so that I can go to the apartment to rest & recover!

It’s going to take a while as it was a full spine fusion & unfortunately… time is money!

The medical flight over here with ICU team was £16,700; the private covid tests me & mum needed to be allowed into Spain were £98 each.

The cost for the emergency halo fitting in theatre upon arrival was around £12,000.

The hospital room costs about £600/day & only one week is included in the original surgical quote.

These costs are additional to the original estimate of £50,000- as things became critical rapidly!

We also need another covid test each before staying at MICs (the adapted apartment), & 2weeks at MICs will cost us about £3,000.

On top of this we need to pay for taxis to outpatient follow up appointments; the extra prescriptions; our covid tests before flying home… & of course, the flights home!

So there’s a lot of additional funds needed & we appreciate any help you can give!

Thanks again for the continued support!

Here’s some photos of me looking much more human today! 😁 I managed 45minutes sitting up in my wheelchair!

Mel x
#MelaniesMissionToLive💜

DONATE:
💜 https://www.paypal.me/melaniesMission2Live

💜https://www.gofundme.com/MelaniesMissionToLive

💜 http://www.melanies-mission-eds.org.uk/donate-now/

Link to my shop:
💜http://www.melanies-mission-eds.org.uk/shop/


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a cause created to fund specialised medical transport and world specialist, potentially life-saving spinal and brain surgery for Mel (a 29yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) the surgery is only available in the USA and costs over £150,000!! WE NEED YOUR HELP

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