Disaster – May 2021


Mel’s PA here, I have been off sick which is why I haven’t had a chance to write anything, and Mel is far too unwell to post anything.

Everything was going well as Mel was approaching the 3 month mark, when disaster struck!!!

When turning Mel, we heard an almighty crack and Mel stopped breathing, about 15 minutes later, Mel then started fitting again, however this time, she couldn’t breath during the seizure!!!
Mel still needs her head pulled to get her out of a seizure, however she is stopping breathing every single time which is much worse than ever before, as she is currently having around 8 a day!!

We have since been in contact with the team in Spain, and we are needing to get Mel back over ASAP.
We are fundraising again for air ambulance, accommodation and covid testing, as we are praying the insurance will cover the operation, so we are trying to raise around 30K.

This is all we know currently as this has all happened so fast and is such a shock to us, so we will keep you updated.

Leah, Mels PA.


? https://www.paypal.me/melaniesMission2Live
? http://www.melanies-mission-eds.org.uk/donate-now/
?Just Giving: https://www.justgiving.com/crowdfunding/melaniesmission2021



About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP

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