Melanie

About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP
Hi, it’s Leah here- Mel’s PA, Mel has massively deteriorated overnight, so I’m writing this post, as she’s unable to herself. Her skull is now slipping constantly- she pushes it back in, moves her fingers and it pops out again, compressing her brainstem. This is causes, loads of seizures, vomiting, […]

?URGENT APPEAL?

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Time for an update…. a target has been set. £50K. So unfortunately things are getting worse scarily fast… everyday new symptoms appear- mainly serious neurological ones. My visions affected now with lightening flashes in my eyes and floaters. Excruciating headaches, vomiting, seizures, agonising pain in my head neck and spine […]

Disaster during the covid crisis!

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