Fundraising

I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...

23/10/2016 in Blog tagged #MelaniesMission / #Seizures / 15 things I couldn't live without / Blog / CCI / Cranio Cervical Instability / EDS / Ehlers Danlos Syndrome / Fundraising / Graduation / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive / Social Media by Melanie

I would like to say A HUGE thank you to #NorthumberlandLightening who raised a grand total of £2,300 to be split between 5 local charities including #MelaniesMissionToLive! ? Thanks guys! You’re AMAZING- we will add the £460 raised to our campaign total!! Check out their story of their #120Days campaign to […]

Northumberland Lightening #120Days

22/10/2016 in Fundraiser / Social Media tagged #MelaniesMission / Fundraiser / Fundraising / Great North 10K / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive / Northumberland Lightning / Social Media by Melanie

Hi all my lovely followers! I’m having a tough time at the moment nearing the start of my FIVTH week in hospital with multiple infections & vomiting. Wednesday was my birthday which I had a few visitors who made it really special for me bringing cake & cards & more importantly […]

Update- nearing 5th week in hospital!

09/09/2016 in Fundraiser / News / Uncategorized tagged #ball / #birthday / #MelaniesMission / Fundraising / Hospital / MelaniesMissionToLive by Melanie