CCI

?Look out for my story online in the Chronicle on Saturday and printed in the Sunday Sun this week!? Dont forget you can buy our wristbands and ball tickets in our shop!! #melaniesMissionToLive #EDSAwareness #CCIAwareness

29/09/2016 in News / Uncategorized tagged #EDSawareness / #MelaniesMission / CCI / Cranio Cervical Instability / EDS / Ehlers Danlos Syndrome / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive by Melanie

This 5 year old sweetheart Elli, who also has Ehlers- Danlos Syndrome (EDS) is making these beautiful bracelets to build awareness of EDS and CCI 🙂 All monies raised will be donated to Melanie’s Mission to live, and will go towards helping “aunty Mel” Mel (Melanie Hartshorn)get to the US […]

#EllisMissionForMelanie

14/09/2016 in Fundraiser tagged #Bracelets / #CranioCervicalInstability / #EhlersDanlosSyndrome / #EllisMissionForMelanie / #MelaniesMission / #Sale / #Spoonie / #Zebra / CCI / EDS / MelaniesMissionToLive by Melanie

At another rheumatology appointment today. I’m tempted to buy a magicians set just so I can pull the magic wand out my sleeve at the next appointment when the Dr says “As you know, we don’t have a magic wand…” and I can say… “Well I DO!” haha.

Rheumatology Appointment

04/07/2016 in News tagged CCI / EDS / Rheumatology / Wansbeck Hospital by ZealousWD