Melanie

About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 32yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help abroad! WE NEED YOUR HELP
  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...

 in Blog  tagged #MelaniesMission / #Seizures / 15 things I couldn't live without / Blog / CCI / Cranio Cervical Instability / EDS / Ehlers Danlos Syndrome / Fundraising / Graduation / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive / Social Media by
Hi, I’m taking the opportunity to write an update while I’m feeling a little better!   Unfortunately I have spend almost all of my time since June, in the Freeman Hospitla with constant UTI/Kidney infections caused by my catheter and hopeless immune system! I now have a long term line (a […]

Home in sight!!

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I would like to say A HUGE thank you to #NorthumberlandLightening who raised a grand total of £2,300 to be split between 5 local charities including #MelaniesMissionToLive! ? Thanks guys! You’re AMAZING- we will add the £460 raised to our campaign total!! Check out their story of their #120Days campaign to […]

Northumberland Lightening #120Days

 in Fundraiser / Social Media  tagged #MelaniesMission / Fundraiser / Fundraising / Great North 10K / Melanies Mission / Melanies Mission To Live / MelaniesMissionToLive / Northumberland Lightning / Social Media by