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‼️After 14 seizures yesterday, screaming in agony and no more than 2hrs sleep since Monday night…. white as a sheet, we had to make our way to the airport for a private covid test. Lying on a stretcher getting my neck tractioned the entire journey to keep me stable and […]

Covid testing


Hi, it’s Leah here- Mel’s PA, Mel has massively deteriorated overnight, so I’m writing this post, as she’s unable to herself. Her skull is now slipping constantly- she pushes it back in, moves her fingers and it pops out again, compressing her brainstem. This is causes, loads of seizures, vomiting, […]

?URGENT APPEAL?