Uncategorized


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So, I had a full spine CT scan & my 4 halo pins switched out for 4new ones in different holes yesterday- and they’re all tight and secure again now. I got home last night & im having a chill day in bed today…. Poppy had a good sniff of […]

November 2021


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💜Update – devastating news💜 I’m not fixed…. I’ve been pretty quiet recently as I’ve been really poorly with covid & the after effects, I’m still not fully recovered to be honest. But, it’s time to update you all about my neck. My fusion was broken years ago, and there are […]

Devastating news




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We had a trip to La Rambla / Barcelona & saw this beautiful fountain. I managed to sit very well but was very sore afterwards – and today, as expected! Thanks again for all the support! #melaniesmissiontolive💜 DONATE: 💜 https://www.paypal.me/melaniesMission2Live 💜https://www.gofundme.com/MelaniesMissionToLive 💜 http://www.melanies-mission-eds.org.uk/donate-now/ 💜Just Giving: https://www.justgiving.com/crowdfunding/melaniesmission2021

First trip out.


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Unfortunately we have had to postpone our return home, which was planned for this Sunday. Dr Gilete felt I need to stay longer to ensure I can sit up safely and seizure free before being confident and able to sign me fit to fly for the flight home…. & after […]

Postponed return home


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Hi, Everything’s a bit of a stress at the moment, it’s all a bit up in the air! My infection & vomiting got worse so Dr Gilete started me on more antibiotics straight away, a different antibiotic cream & a long course of strong oral antibiotics. They’ve taken cultures and […]

How to get home




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Hi, So a lot has happened in a short space of time… one thing being the day we planned to reattach the halo, my neck started constantly clicking again and I had a seizure and stopped breathing… this was the first one post op. So, I was put back into […]

Post op update, mixed emotions


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So, today’s update isn’t very exciting. I’ve been very tired and in a lot of pain. We all decided it’s best for me to not sit up until the halo vest is back on, so I’m on bed rest in all my braces to keep me as safe as possible, […]

Sunday 23rd may