Melanie


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a cause created to fund specialised medical transport and world specialist, potentially life-saving spinal and brain surgery for Mel (a 29yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) the surgery is only available in the USA and costs over £150,000!! WE NEED YOUR HELP


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Hi, So a lot has happened in a short space of time… one thing being the day we planned to reattach the halo, my neck started constantly clicking again and I had a seizure and stopped breathing… this was the first one post op. So, I was put back into […]

Post op update, mixed emotions


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So, today’s update isn’t very exciting. I’ve been very tired and in a lot of pain. We all decided it’s best for me to not sit up until the halo vest is back on, so I’m on bed rest in all my braces to keep me as safe as possible, […]

Sunday 23rd may


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Today’s been a better day! I’ve been awake all day, managed to eat 3meals for the first time in ages & then after a very long hard day operating Dr Gilete came to help me try and sit up in bed. We were all pretty nervous  & my mum, Dr […]

Sitting up!



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So I’ve spent most of my time resting & in pain… But today seem to have turned a corner! During the surgery one of the things Dr Gilete found was that the bone had been resorbed , we think this is because of my osteoporosis but it’s not good at […]

Rough days


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Well, today’s the day! I’m all scrubbed, gowned up and ready to go. Looking forward to not popping and cracking all the time & making the first steps in recovery… AGAIN. Round 5, but it’s exactly 4 years since my first admission here for the surgery that fixed me and […]

Surgery day- round 5


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Hi, I’ve been poorly for a couple of days with a UTI but luckily the iV antibiotics seem to be kicking in now! Just in time for my surgery tomorrow morning! I’m having the surgery then will be in a coma in ICU for a day or two, before coming […]

Day before surgery.. round 5



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Hi, So, the hospital decided surgery on a Saturday was a bad idea as there’s less staff in icu over the weekend, so I’m having it Monday morning instead. Ive had all the pre op tests and signed all the forms, so I’m just chilling in my halo until surgery […]

Surgery postponed



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Hi, it’s me again (Leah)! Mel has had 11 seizures today alone, is in absolute agony and had hardly any sleep since Wednesday night…. she’s needing watched 24:7 & is as white as a sheet, we had to make our way to the airport for a private covid test today. […]

Covid testing & a rough night!