Increased target for new surgery!!
????23% to target
-£19,376 raised of £85K
As you know I recently rapidly deteriorated and had to rush back to Barcelona to have T4 fused with new hardware…. Hence the original target on this fundraiser of £25K.
However when they did the surgery they discovered my ribs were dislocating at the spine in all directions on the right hand side.
It was so severe they were literally dislocating with every breath– my surgeon was shocked! He said he’s never seen this type of instability so severe.
We had to schedule an urgent CT and work with a thoracic surgeon on a plan. The thoracic surgeon identified 4 ribs that need fused to my spine.
They are dislocating each time I move or breathe and it’s agony. They said it’s so severe it’s usually only seen in car crash victims!
This is why I’m in such horrific pain, and this is why I’ve been forced to raise the total by about £60,000 (to £85000 total for both surgeries) on this fundraiser to cover the cost of the new rib fusion surgery!
Unfortunately this surgery can only be done for me in Barcelona, as I already have a full spinal fusion and one of the spinal rods needs replaced to attach to the new rib fusion system…. This means my neurosurgeon Dr Gilete is needed during the surgery to do this neurosurgical part alongside the thoracic surgeon.
And… yet again time is critical…
The specialist thoracic surgeon stated, if we leave it too long, the instability will worsen and is likely to spread to more ribs, meaning if need more then 4 fused! Fusing more ribs means more restricted breathing and a less positive outcome for the surgery!
I’m desperate to get back ASAP before I deteriorate too much, I’m suffering so much at the moment and my body simply isn’t coping with the pain! My endocrinologist has said all my recent (life threatening) adrenal crisis will be from the severe pain I’m in- so we are having to double dose my steroids. Which has major side effects long term, so she’s hoping I have surgery soon so we can reduce my steroid dose and prevent the long term side effects.
If we don’t raise the funds fast I’m in big trouble!
Thanks again for always supporting me… My dream of walking and teaching was so close… I’m holding onto the hope that again, we can do this together!”
“No dark cloud can forever prevent the sun from shining!”
Mel x
#????????????????????????????????????????????????????????????????????????????????????????
Alternative ways to donate:
???? https://gofund.me/b6fe4799
????https://www.melanies-mission-eds.org.uk/donate-now/
PayPal:
???? https://www.paypal.com/pool/9hg3NBUuDn?sr=wccr
Or to melanies-mission@hotmail.com via PayPal friends and family!