Sunday 23rd may


So, today’s update isn’t very exciting.

I’ve been very tired and in a lot of pain. We all decided it’s best for me to not sit up until the halo vest is back on, so I’m on bed rest in all my braces to keep me as safe as possible, until Tuesday. On Tuesday my dressings will be changed again & the halo reapplied… once it’s on & we know I’m safer, I can start sitting more & transferring more often.

We don’t want me to overdo it & for something to go wrong-  I’m like a China doll, so delicate & fragile!

So we’re just working on reducing my IV pain meds & steroids & getting onto oral ones, until then really!

Then Tuesday the halo goes back on, & if I’m managing transfers & coping with the pain I’ll be able to leave at the end of the week to go to the apartments.

Aiming for Thursday- fingers crossed!

We still need to raise the remaining funds & are currently still £24k away from target. The halo costs £2.5k & that needs to be fitted on Tuesday so that I can start sitting up more & moving safely.

Then I’ll be recovering at mics until I’m well enough to fly home!

Thanks again,

Mel x

#MelaniesMissionToLive

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About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 31yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help in the USA! WE NEED YOUR HELP

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