Sitting up!

Today’s been a better day!

I’ve been awake all day, managed to eat 3meals for the first time in ages & then after a very long hard day operating Dr Gilete came to help me try and sit up in bed.

We were all pretty nervous  & my mum, Dr G & the nurse were all stood ready incase anything happened- but it was fine & i didn’t have any seizures!

So now I have to practise sitting up again but with ALL my braces on tight & be very, very careful as I’m “very fragile”.

We need pain to settle & wounds to heal, then we can get my halo back on so I’m safe to recover in the apartments. But, I’ve gotta do it slowly & carefully.

I’m so relieved to be fixed again & so grateful to Dr Gilete for getting me here so quickly again & looking after me so well!

I still get the fear when I’m going to sleep that I might stop breathing.. but, if I can sit up without seizures, we know I’m good! My leg, foot and toes are working again too- always a bonus to be able to move both feet & all ten toes! 😂

Now I need to try & raise the remaining funds to ensure this surgery fuses & lasts long term… it’s such a worry & I’m shattered!

Thanks again for the incredible support!






💜Just Giving:


About Melanie

PLEASE DONATE NOW to #MelaniesMissionToLive - a charitable trust fund created to fund specialised medical transport and world specialist, life-saving spinal and brain surgery for Mel (a 31yr old Newcastle University biology graduate from Cramlington, Northumberland) before its too late!! Due to Mel's complex underlying conditions (EDS and CCI) her only option for revision surgery to fix her broken fusion is to seek help in the USA! WE NEED YOUR HELP

Leave a comment

Your email address will not be published. Required fields are marked *