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  Here’s a video I made before becoming unwell with this infection, promoting our #FingersCrossedSelfie appeal for Melanie’s Mission To Live!  

#FingersCrossedSelfie Appeal


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Just a quick update to say I’m in hospital again with another infection! Been here 6 days now, I was featured in the Chronicle the other day due to the struggle we have had getting support with care, see the story here: http://www.chroniclelive.co.uk/news/north-east-news/northumberland-woman-forced-live-life-11960368  

Hospital again… day 6!


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After spending almost 6 weeks in hospital…. I’m back AGAIN! i had the pleasure of a week at home- a record for me as I’ve not spent that long at home for months! im now back needing IV fluids, antibiotics and antisickness medications….. But they need to place ANOTHER midline […]

BACK AGAIN!



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?Look out for my story online in the Chronicle on Saturday and printed in the Sunday Sun this week!? Dont forget you can buy our wristbands and ball tickets in our shop!! #melaniesMissionToLive #EDSAwareness #CCIAwareness


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#melaniesMissionToLive are appealing that YOU donate YOUR #FirstFiver to US? Give Mel a chance at life by funding lifesaving surgery in the US! Post to: Melanie Hartshorn 20 Sea View Villas Cramlington Northumberland NE23 2AD   Dont forget to post on social media: I donated my #FirstFiver to #MelaniesMissionToLive will YOU? […]


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This video is to say thank up to Sheereen for all she does!  

Thank you!



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After almost 6 long weeks in hospital even spending my birthday there…. ….…I’m finally home!  My dog Poppy was VERY excited to see me (she’s been a bit depressed whilst I’ve been in hospital and has apparently been sulking and sighing a lot!) along with my 3YO niece Katiya and […]

Home at last!



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This 5 year old sweetheart Elli, who also has Ehlers- Danlos Syndrome (EDS) is making these beautiful bracelets to build awareness of EDS and CCI 🙂 All monies raised will be donated to Melanie’s Mission to live, and will go towards helping “aunty Mel” Mel (Melanie Hartshorn)get to the US […]

#EllisMissionForMelanie