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Today is my niece, Katiya’s 4th birthday… She’s a very special person in my life and I love her dearly. It is her that keeps me going, giving me a reason to smile on even the darkest of days. Today, I cried inside, because I couldn’t give her a hug […]

Today my heart broke a little…



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Thanks to #TheCourier for featuring #MelaniesMissionToLive & the fundraising success by #NewcastleUniversity staff In this weeks printed paper!

The Courier


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The Michaela Percival School Of Dance are kindly choreographing & performing a spectacular Flash Mob in aid of Melanie’s Mission To Live! The flash mob will take place at Mannor walks Shopping Centre on the 10th of December at 3pm, in centre mall 3 opposite Claire’s Accessories! This is going […]

Melanie’s Mission To Live Flash Mob!


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  I couldn’t live with Ehlers Danlos Syndrome and Cranio- Cervical Instability without: 1. My iPhone My iPhone is my lifeline, I use it 24/7, literally have it strapped to my arm with a seizure detection App Siezalarm on it. This detects the movements when I’m fitting and calls my […]

15 things I couldn’t live without, with Ehlers Danlos Syndrome ...



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Hi, I’m taking the opportunity to write an update while I’m feeling a little better!   Unfortunately I have spend almost all of my time since June, in the Freeman Hospitla with constant UTI/Kidney infections caused by my catheter and hopeless immune system! I now have a long term line (a […]

Home in sight!!


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I would like to say A HUGE thank you to #NorthumberlandLightening who raised a grand total of £2,300 to be split between 5 local charities including #MelaniesMissionToLive! ? Thanks guys! You’re AMAZING- we will add the £460 raised to our campaign total!! Check out their story of their #120Days campaign to […]

Northumberland Lightening #120Days


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????Bad news!!???? Unfortunately due to my severe ill health with constant infections I’m devestated to have to say the #MelaniesMissionToLive purple zebra ball is having to be postponed from November the 5th until sometime in the New Year! So sorry for the inconvenience and I will let you all know […]

Purple Zebra Ball -POSTPONED